TippiTV Crohn’s Disease Meeting | Daily health
Managing your physical symptoms is just one aspect of living with Crohn’s disease. Dating, marriage, your relationships with family, friends, and members of your social and cultural group – these facets of life can all be affected when you have a chronic illness like Crohn’s disease.
And unfortunately, negative perceptions and misconceptions about IBD can be a big part of living with Crohn’s disease as well. A review published in March 2016 in the journal Clinical and experimental gastroenterology have found that people with IBD can experience stigma.
Tina, who is South Asian American, noted that in her culture, people with illnesses are often “impaired” and discriminated against. She also notes: “I have been told over and over again that my husband is an angel to marry me because in my culture you do not marry under such conditions.” To combat this stigma, she recently co-founded IBDesis, a global platform dedicated to educating and empowering South Asians living with IBD.
– Tina Aswani Omprakash
Harmon, who is African American, added that he had hidden his illness all his life because of prejudices in his culture, in which, he said, “pain and illness are seen as weakness.”
Navigating romantic relationships is another area that can be tricky if you live with Crohn’s disease. Harmon admits he used to think, whoever wants to be with me, I don’t want to be with them. It’s a sentiment that Tina Shakiyah echoed. “I dealt with that a lot too, especially at the beginning,” she says. “I told myself that no one is going to want to date someone or marry someone with this disease, and that has blocked a lot of people in my life.” But, she said, seeing people like Myra, a mother of two grown children, and Natalie, who is pregnant with her third child, made it clear to her, “You can have this family and someone who is going to love you, little. no matter what you have. . “